Our Bodies, Our Data: How Companies Make Billions Selling Our Medical Records

Our Bodies Our Data How Companies Make Billions Selling Our Medical Records How the hidden trade in our sensitive medical information became a multibillion dollar business but has done little to improve our health care outcomes Hidden from consumers patient medical data has

  • Title: Our Bodies, Our Data: How Companies Make Billions Selling Our Medical Records
  • Author: Adam Tanner
  • ISBN: 9780807033340
  • Page: 369
  • Format: Hardcover
  • How the hidden trade in our sensitive medical information became a multibillion dollar business, but has done little to improve our health care outcomes.Hidden from consumers, patient medical data has become a multibillion dollar worldwide trade between our health care providers, drug companies, and a complex web of middlemen This great medical data bazaar sells copies ofHow the hidden trade in our sensitive medical information became a multibillion dollar business, but has done little to improve our health care outcomes.Hidden from consumers, patient medical data has become a multibillion dollar worldwide trade between our health care providers, drug companies, and a complex web of middlemen This great medical data bazaar sells copies of our prescriptions, hospital records, insurance claims, blood test results, and , stripped of names but still containing identifiers such as year of birth, gender, and doctor s name As computing grows ever sophisticated, these patient dossiers are increasingly vulnerable to re identification, which could make them a target for identity thieves or hackers.Paradoxically, comprehensive electronic files for patient treatment a key reason medical data exists in the first place remain an elusive goal Even today, patients and their doctors rarely have easy access to full records that could improve care In the evolution of medical data, the instinct for profit has outstripped patient needs This book reveals the previously hidden story of how such a system evolved internationally.This investigative narrative seeks to spark debate on how we can best balance the promise big data offers to advance medicine and improve lives, while preserving the rights and interests of every patients We, the patients, deserve a say in this discussion After all, it s our data.

    One thought on “Our Bodies, Our Data: How Companies Make Billions Selling Our Medical Records”

    1. I won this book in a drawing.A wonderful book that records how big data was invented by the pharmaceutical industry in order to help patients, but instead helps big pharma make all sorts of money. The patient doesn't even have access to many of their own records. Congress, of course, made things worse.You'll be angry by the time you finish this book, but at least you'll be angry at the correct people.

    2. People have mistrusted what large institutions were doing with their health data for a long time--particularly after records were digitized. Tanner talks about the realities, going back to the 1950s and summarizing where we are today. The book is well-balanced, quoting data miners sympathetically but pointing out also the risks of sharing patient data, even in anonymized form. Actually, there is little evidence either of real harm or of real research benefits from this data sharing. As Tanner sa [...]

    3. First, the caveat. I received this book as a Giveaway. There is much smoke in this book, but not much fire. It works hard to sound the alert, but even the author advises that there are no evil entities and no villain and no broad harm done, only lots of potential. Even that potential harm currently amounts to targeted advertising and the humiliation of being "outted" as having some particular medical condition. I don't want either of those, and I agree with the author's premise that it is one's [...]

    4. Again, this is not normally a book that I would pick up and read for fun, but it was very well written and thoroughly investigated and shed light on how our medical data is supposed to be protected instead of brokered. I never really knew that such a thing as data mining existed. It's a scary thought that our medical information is out there for anyone to get their hands on.

    5. The author did not enough emphasis to the positive effects of public health research, which uses the electronic health data.

    6. Everything we do creates a trail of data, and there's usually someone making money off of analyzing it. It turns out that that's true for our personal medical records, too. Stripped of a few identifying fields, data from doctors, hospitals, and pharmacists make their way into massive databases for analysis and profit.Theoretically, all that data should be useful for improving our health, but for-profit industry has been more effective at turning it into intelligence for marketing and sales. Tann [...]

    7. Not especially gripping, but important, especially as we debate national health care policy. I cringe when I know I am providing my data to be sold at the supermarket and now will have to feel the same way at the doctors. All privacy in the digital age is illusory.

    8. This is a book that was quite an eye opener. I have read in the past that data is worth money. However, this book really puts that in perspective and how our information can and is being sold. Sadly the selling of our information still happens and this book sheds light on a subject that everyone who cares(and it should be everyone who does care) about should read.

    9. Our Bodies, Our Data is a solid book without sensationalist language that forces one to realize the crazy discrepancy between the ease by which various commercial entities can buy/sell/trade one's medical information and the near impossibility of getting all of one's own health data together in one virtual location, whether that is a personal health record or the electronic health record for one's primary care provider. Having grown up seeing various (always attractive) drug salespeople show up [...]

    10. Our Bodies, Our Data: How Companies Make Billions Selling Our Medical Data by Adam Tanner is a non-fiction book talking about how companies use big medical data. Mr. Tanner writes about business and personal data and privacy issues.The book is a sometimes fascinating, sometimes frightening book telling how our medical records are used to analysis and profit. The data, which strips personally identifiable information (but not really) is being collected by middle men from doctors, pharmacies, hosp [...]

    11. (Note: I received a free copy of this book in exchange for an honest online review)This book is about the industry that collects and sells “anonymized” medical records and, to a lesser extent, is about your private medical records. The highly profitable business of collecting and selling of “anonymized” medical records (e.g. prescriptions filled at drugstores, records from doctors offices, test results from medical lab) is perfectly legal as long as the process complies with legislation [...]

    12. Disclosure: ARC received from Edelweiss & publisher in exchange for an honest review. (They may regret this.) Any and all quotes were taken from an advanced edition subject to change in the final edition.

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