The Power of Two: A Twin Triumph Over Cystic Fibrosis

The Power of Two A Twin Triumph Over Cystic Fibrosis For most people a diagnosis of cystic fibrosis means the certainty of a life ended too soon But for twin girls with the disease what began as a family s stubborn determination grew into a miracle Th

  • Title: The Power of Two: A Twin Triumph Over Cystic Fibrosis
  • Author: Isabel Stenzel Byrnes Anabel Stenzel
  • ISBN: 9780826217547
  • Page: 361
  • Format: Hardcover
  • For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon But for twin girls with the disease, what began as a family s stubborn determination grew into a miracle The tragedy of CF has been touchingly recounted in such books as Frank Deford s Alex The Life of a Child, but The Power of Two is the first book to portray the symFor most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon But for twin girls with the disease, what began as a family s stubborn determination grew into a miracle The tragedy of CF has been touchingly recounted in such books as Frank Deford s Alex The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship between twins who share this life threatening disease through adulthood Isabel Stenzel Byrnes and Anabel Stenzel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins bicultural heritage Japanese and German influenced the way they coped with these challenges Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations But they tell how, in the face of innumerable setbacks, their deep seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a crossroads in their lives We have an old life one of growing up with chronic illness and a new life one of opportunities and gifts we have never imagined before In this memoir, they pay tribute to the people who shaped their experience The Power of Two is an honest and gripping portrayal of day to day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival It conveys an important message to both popular and professional readers as it addresses key psychosocial issues in chronic illness throughout the sufferer s lifespan and illuminates the human side of advances in biotechnology Even as gene therapy and stem cell research increase the chances for eradicating CF, this stirring account portrays its effects on one family that refused to give up These two remarkable sisters have much to teach about the power of perseverance and about the ultimate power of hope.

    One thought on “The Power of Two: A Twin Triumph Over Cystic Fibrosis”

    1. Disclaimer: I went to college with Isa and Ana, although I don't know them very well. I feel that I can provide an unbiased review, though -- if I hadn't absolutely loved the book, I probably would not have reviewed it at all.I purchased the book at a screening of a new documentary film about Ana and Isa (The Power of Two: Twin sisters, two cultures, two new chances at life). As soon as I started reading the book I couldn't put it down. I am absolutely amazed at the incredible journey Isa and An [...]

    2. This book is about more than Cystic Fibrosis, (CF), it's about overcoming impossible odds. About working tremendously hard to change what you can when you can't change your circumstances. It's about a love for life that is deeper than many of us will ever grasp, finding joy in every moment and the strength of family and siblings.This is a must read for any parent of a CF child. (but I would wait until at lesat a year or two after diagnosis so it won't overwhelm) Grandparents who want to be invol [...]

    3. It's a good book overall but I was highly disappointed that the twins say that having a lung transplant "cured" their CF. This is NOT the case. As a person with CF with minimal lung problems (and LOTS of other problems) it shocked me to hear them say this (several times, even). Your body still hold the gene for CF even if your lungs genetically don't have CF anymore. Having CF is not just about having lung problems.

    4. So different from other books that have a 'public' face to their illness - the Stenzel sisters were very candid about their fears and embarassments. The contrasts were fascinating - as similar as they were.

    5. I enjoyed reading about these girls' experience with CF and how it affected their lives. Every CF experience I read/hear about is so unique, but yet there are so many things similar to me. It's amazing to read about the incredible strength of all CF patients and their families.

    6. I'm glad I read this as it provided me amazing insight on how my friend with CF lives. I don't think it is particularly well written, but I forced myself to overlook that.

    7. I found this very helpful and inspiring. Hard to get through at times, but two very couragous people, just like another one I love.

    8. Kindra, this is a must read for you, I think. About how CF affects two young women, twins, about your age. Gave me great insight into some of Zachary's problems. Plus it's a great read.

    9. This book shed some light on the struggles of living with a chronic illness. I got to meet Ana and Isa and discuss their book with them.

    10. This book is about twins in their forties who were born with cystic fibrosis. They co-wrote this book. I like the story, and I like the way they told it. And I liked that it had Bob Flanagan in it.

    Leave a Reply

    Your email address will not be published. Required fields are marked *